I'm glad you see the effect this issue will have on all tax-payers, not just those suffering from the disease. I had posted a short bit about it in very basic terms a while back in this lj post.
I decided that this had to be included every time I could remember to do so. If you can't appeal to people on compassion issues, you may be able to reach them through their pocketbooks. Especially when writing people like the governor, etc. I also hit up the one state Rep in Texas who has had the disease and its complications, and the head of the Board of medical examiners (a pox upon him).
I keep a low profile on LJ because I don't want a future employer googling on my past problems. They are a private list -- friends and writers I know who might be curious about the progression of a disease. If you want to list an email on your profile, I'll try to remember to continue this later. Thanks for posting.
Not everyone is so fortunate....
I decided that this had to be included every time I could remember to do so. If you can't appeal to people on compassion issues, you may be able to reach them through their pocketbooks. Especially when writing people like the governor, etc. I also hit up the one state Rep in Texas who has had the disease and its complications, and the head of the Board of medical examiners (a pox upon him).
I keep a low profile on LJ because I don't want a future employer googling on my past problems. They are a private list -- friends and writers I know who might be curious about the progression of a disease. If you want to list an email on your profile, I'll try to remember to continue this later. Thanks for posting.